What do the dissociative disorders have in common?

There are different types of dissociative disorder. There is more information on each of these below.

It‘s important to remember that you could have the symptoms of dissociation without a dissociative disorder. There is also a lot of disagreement among professionals over dissociative disorders.

What is dissociative amnesia?

If you have dissociative amnesia you might not remember things that have happened to you. This may relate to a stressful or traumatic event, but doesn’t have to.

In severe cases you might struggle to remember:

  • who you are,
  • what happened to you, or
  • how you felt at the time of the trauma.

This isn’t the same as simply forgetting something. It is a memory ‘lapse’. This means you can’t access the memory at that time, but they are also not permanently lost.

With dissociative amnesia you might still engage with other people, such as holding conversations. You might also still remember other things and live a normal life. But you might also have flashbacks, unpleasant thoughts or nightmares about the things you struggle to remember.

You may have dissociative amnesia with dissociative fugue. This is where someone with dissociative amnesia travels or wanders somewhere else, related to the things they can’t remember. You may or may not have travelled on purpose.

What is dissociative identity disorder (DID)?

Dissociative identity disorder (DID) is sometimes called ‘Multiple Personality Disorder. But we have called it DID on this page.

If you have DID you might seem to have 2 or more different identities, called ‘alternate identities. These identities might take control at different times.

You might find that your behaviour changes depending on which identity has control. You might also have some difficulty remembering things that have happened as you switch between identities. Some people with DID are aware of their different identities, while others are not.

There is a lot of disagreement between researchers over the notion of DID.

We think of someone with DID as having different identities. But some researchers think that that these are actually different parts of one identity which aren’t working together properly.

They suggest that DID is caused by experiencing severe trauma over a long time in childhood. By experiencing trauma in childhood, you take on different identities and behaviours to protect yourself. As you grow up these behaviours become more fully formed until it looks like you have different identities. When in fact the different parts of your identity don’t work together properly.

What is other specified dissociative disorder?

With this diagnosis you might regularly have the symptoms of dissociation but not fit into any of the types.

A psychiatrist uses this diagnosis when they think the reason you dissociate is important.

The reasons they give include the following.

  • You dissociate regularly and have done for a long time. You might dissociate in separate, regular episodes. Between these episodes you might not notice any changes.
  • You have dissociation from coercion. This means someone else forced or persuaded you. For example, if you were brainwashed, or imprisoned for a long time.
  • Your dissociation is acute. This means that your episode is short but severe. It might be because of one or more stressful events.
  • You are in a dissociative trance. This means you have very little awareness of things happening around you. Or you might not respond to things and people around you because of trauma.

What is unspecified dissociative disorder?

This diagnosis is used where you dissociate but do not fit into a specific dissociative disorder.

Psychiatrists also use this diagnosis when they choose not to specify the reasons why you do not fit into a specific disorder.

Or if they don’t have enough information for a specific diagnosis. For example, after a first assessment in accident and emergency.

What are dissociative seizures?

Dissociative seizures are hard to get diagnosed. They are regularly wrongly diagnosed as epilepsy.

Dissociative disorders can also be known as non-epileptic attack disorder (NEAD).

It can be hard to tell the difference between a dissociative and epileptic seizure. An EEG can read epileptic seizures but can’t read dissociative seizures. An EEG is a test that detects electrical activity in your brain using small, metal discs attached to your scalp.

Dissociative seizures happen for psychological reasons not physical reasons.

What is depersonalisation/ derealisation disorder (DPDR)?

The feelings of depersonalisation and derealisation can be a symptom of other conditions. It has also been found among people with frontal lobe epilepsy and migraines.

But it can also be a disorder by itself. This means it is a ‘primary disorder’. There is some disagreement among professionals whether DPDR should be listed with the other dissociative disorders at all.

DPDR has some differences to other dissociative disorders. In DPDR you might not question your identity or have different identities at all. You may still be able to tell the difference between things around you. And there may be no symptoms of amnesia. Instead, with DPDR you might feel emotionally numb and questions what it feels like to live. We have explained this in more detail below.

You might have these feelings constantly rather than in episodes. It doesn’t have to have been caused by a traumatic or stressful event.

Many people think that this disorder might be more common than previously thought. This might be because of:

  • a lack of information about it,
  • patients who didn’t report their symptoms, and
  • doctors who don’t know enough about it, meaning they underreport the condition.

With DPDR you might have symptoms of depersonalisation or derealisation or both.

Depersonalisation
With depersonalisation you might feel ‘cut off’ from yourself and your body, or like you are living in a dream. You may feel emotionally numb to memories and the things happening around you. It may feel like you are watching yourself live.

The experience of depersonalisation can be very difficult to put into words. You might say things like ‘I feel like I don’t exist anymore’ or ‘It’s as if I’m watching my life from behind glass’.

Derealisation
If you have derealisation you might feel cut off from the world around you. You might feel that things around you don’t feel real. Or they might seem foggy or lifeless.

Dissociative disorders are a range of conditions that can cause physical and psychological problems.

Some dissociative disorders are very shortlived, perhaps following a traumatic life event, and resolve on their own over a matter of weeks or months. Others can last much longer.

Symptoms of dissociative disorder can vary but may include:

  • feeling disconnected from yourself and the world around you
  • forgetting about certain time periods, events and personal information
  • feeling uncertain about who you are
  • having multiple distinct identities
  • feeling little or no physical pain

Dissociation is a way the mind copes with too much stress.

Periods of dissociation can last for a relatively short time (hours or days) or for much longer (weeks or months).

It can sometimes last for years, but usually if a person has other dissociative disorders.

Many people with a dissociative disorder have had a traumatic event during childhood.

They may dissociate and avoid dealing with it as a way of coping with it.

There are several different types of dissociative disorder.

The 3 main types are:

  • depersonalisation-derealisation disorder
  • dissociative amnesia
  • dissociative identity disorder

Depersonalisation-derealisation disorder

Depersonalisation is where you have the feeling of being outside yourself and observing your actions, feelings or thoughts from a distance.

Derealisation is where you feel the world around is unreal. People and things around you may seem "lifeless" or "foggy".

You can have depersonalisation or derealisation, or both together. It may last only a few moments or come and go over many years.

Dissociative amnesia

Someone with dissociative amnesia will have periods where they cannot remember information about themselves or events in their past life.

They may also forget a learned talent or skill.

These gaps in memory are much more severe than normal forgetfulness and are not the result of another medical condition.

Some people with dissociative amnesia find themselves in a strange place without knowing how they got there.

They may have travelled there on purpose, or wandered in a confused state.

These blank episodes may last minutes, hours or days. In rare cases, they can last months or years.

Dissociative identity disorder

Dissociative identity disorder (DID) used to be called multiple personality disorder.

Someone diagnosed with DID may feel uncertain about their identity and who they are.

They may feel the presence of other identities, each with their own names, voices, personal histories and mannerisms.

The main symptoms of DID are:

  • memory gaps about everyday events and personal information
  • having several distinct identities

Someone with a dissociative disorder may also have other mental health conditions, such as:

They may also have problems sleeping (insomnia).

The causes of dissociative disorders are not well understood.

They may be related to a previous traumatic experience, or a tendency to develop more physical than psychological symptoms when stressed or distressed.

Someone with a dissociative disorder may have experienced physical, sexual or emotional abuse during childhood.

Some people dissociate after experiencing war, kidnapping or even an invasive medical procedure.

Switching off from reality is a normal defence mechanism that helps the person cope during a traumatic time.

It's a form of denial, as if "this is not happening to me".

It becomes a problem when the environment is no longer traumatic but the person still acts and lives as if it is, and has not dealt with or processed the event.

A GP may examine you and do some tests to check if another illness might be the cause of your symptoms.

They may also refer you to a mental health specialist for a full assessment.

Assessment

The specialist who carries out your assessment should have a good understanding of dissociative disorders.

The assessment may include:

  • a physical examination to rule out things like a head injury or drug or alcohol misuse
  • questions about your thoughts, feelings, behaviour and your symptoms

It's important to be honest about your symptoms and not to feel ashamed or embarrassed, so you can receive the help and support you need.

Many people with a dissociative disorder make a full recovery with treatment and support.

Talking therapies

Talking therapies are often recommended for dissociative disorders.

The aim of talking therapies such as counselling is to help you cope with the underlying cause of your symptoms, and to learn and practise techniques to manage the periods of feeling disconnected.

Medicines

There's no specific medicine to treat dissociation, but medicines like antidepressants may be prescribed to treat associated conditions like depression, anxiety and panic attacks.

If you have thoughts about taking your life, it's important you ask someone for help.

It's probably difficult for you to see it at this time, but you're not alone or beyond help.  

There are people you can talk to who want to help:

  • speak to a friend, family member or someone you trust, as they may be able to help you calm down and find some breathing space
  • call the Samaritans free 24-hour support service on 116 123
  • go to your nearest A&E and tell the staff how you're feeling
  • contact NHS 111
  • make an urgent appointment to see a GP

Find out more about getting help if you're feeling suicidal

What to do if you're worried about someone

If you're worried that someone you know may be considering suicide, try to encourage them to talk about how they're feeling.

Listening is the best way to help. Try to avoid offering solutions and try not to judge. 

If they have previously been diagnosed with a mental health condition, such as depression, you can speak to a member of their care team for help and advice.

If you have a dissociative disorder, getting help and support is an important part of the recovery process.

Talking to your partner, family and friends about how your past experiences have affected you can help you come to terms with what happened, as well as helping them understand how you feel.

Mental health charity Mind has more information on dissociative disorders and a list of support organisations.

Reading about other people with similar experiences may also help.

You can read people's personal accounts of living with a number of different mental health conditions on healthtalk.org.